How to Become Part of the URADD Registry

Right now, we do not know how many people in Utah have ASDs. We need to

learn about as many people with ASDs in Utah as possible to have good information.

We would like as many people with ASDs in Utah as possible to be part of the URADD

project.

 

The information that is collected by URADD will be protected from disclosure.

We will share information about the numbers of people with ASDs to help plan for

future school and health care needs. We will share only numbers with no identifying

information. Researchers who are studying possible causes and treatments of ASDs

and other disabilities might want to ask some people who are in the registry to take

part in their studies. URADD will not share any of your personal information with

researchers UNLESS they have your full permission to do so.

 

Please use this form to send us information about someone

who has an ASD. You can download the forms from this web

site. The Self-Registration Form is for parents, legal

guardians or individuals with ASDs to complete. It is five

pages long and should take no more than 30 minutes to

finish.

 

Forms can be sent back to URADD by fax or by mail.

The fax number is (801) 585-5723.

Your fax will go to a machine in a secure area where it could

not be read by anyone who does not work for URADD.

 

If you have any problems downloading the forms or if you have

any questions while filling the forms out, please call URADD at (801) 585-7576

and ask for assistance from the Project Coordinator or Epidemiologist.

Mailing Address

University of Utah School of Medicine
Department of Psychiatry
Utah Registry of Autism and Developmental Disabilities
650 Komas Way Suite 206
Salt Lake City, Utah 84108

Self-Registration Form (PDF File)