Resources

Education

Family History

Ethical, legal, and social implications

***The Chronic Disease Genomics Program is not responsible for the content in the following websites. The links are recommendations only.***

• Success Stories Booklet - compilation of successful projects completed by the Genomics Program during the past 5 years.

• Utah Genomics Plan - This plan is a combination of the activities the Family Health History Taskforce would like to accomplish in addition to the goals developed by the Chronic Disease Genomics Standing Committee.

• WikiGenetics

Education

• Gaps in Current Genomics Resources Report - a comprehensive listing of current genomics resources and gaps in those resources for public health, health care providers, policymakers, and the public.

• Utah Genomics Plan - describes Utah's goals for promoting family health history and genomics in chronic disease prevention. Developed as a supplement to the Utah State Genetics Plan.

• Utah State Genetics Plan - describes Utah's goals for promoting healthier populations and increasing the effectiveness of public health systems in reducing the burden of chronic diseases through use of genetic information.

• Using Family History to Improve Your Health curriculum - This curriculum was developed by the Genetic Science Learning Center. It meets state and national high school biology and health education standards. To access the curriculum, you must register (FREE) as a teacher.

• From genetics to genomics for teachers - This resource explores family history, multifactorial traits, and genetic variations.

• CDC Office of Genomics and Disease Prevention

• National Coalition for Health Professional Education in Genetics (NCHPEG)

• Association of State and Territorial Health Officers Genomics Toolkit

• CDC Genomics for Public Health Practitioners

• The Genomics Revolution and Public Health

• Genetic Science Learning Center

• PBS - DNA television series

• NOVA - Cracking the Code of Life series

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Family History

• Family Health History Toolkit

• Family History as a Tool for Public Health and Preventive Medicine Public Health Perspective

• Family health history fact sheets on breast cancer, prostate cancer, colorectal cancer, heart disease, high blood pressure, diabetes and depression (from the Minnesota Department of Health)

• CDC Family History Initiative

• The Genetic Family History in Practice Newsletter

• The Family History: More Important than Ever

• American Medical Association

• National Society of Genetic Counselors

• Generational Health

• Mayo Clinic - search for "family history"

• Your Disease Risk

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Ethical, legal, and social implications

• Utah Genetic Testing Privacy Act, 2002

• National Conference of State Legislatures
  Genetic Technology Project

• The Council for Responsible Genetics: Genetics and the Law

• National Human Genome Research Institute

• Communities of Color and Genetic Policy Project

• Department of Energy Human Genome Project

• Race, Genetics, and Health Care: What We Know and What It Means for Your Practice

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