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Baby's First Test
http://www.babysfirsttest.org/

AAP Newborn Screening Fact Sheets
http://www.aap.org/healthtopics/stages

Children's PKU Network
http://www.pkunetwork.org/

Cystic Fibrosis Foundation
http://cff.org/

Expanded Newborn screening using tandem mass spectrometry
http://www.newbornscreening.info/

Intermountain Cystic Fibrosis Center
http://utahcysticfibrosis.org/

March of Dimes
http://www.marchofdimes.com/

Montain States Genetics Network (MoSt GeNe)
Resource for Newborn Screeing Practitioners Manual and the Genetic Drift
http://www.mostgene.org/

National Newborn Screening and Genetics Resource Center (ACT sheets)
http://genes-r-us.uthscsa.edu/

National PKU News
http://www.pkunews.org/

NORD, National Organization for Rare Disorders
http://www.rarediseases.org/cgi-bin/nord

OMIM, Online Mendelian Inheritance in Man
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=omim