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Autism System Development

The Autism Systems Development Program seeks to advance, educate and empower the lives of individuals affected by Autism Spectrum Disorder (ASD) in Utah by monitoring occurrence, reducing the age at first diagnosis, referring to services, facilitating research, and providing education and outreach.

The Bureau:

  • Hosts the Utah Autism Initiative (UAI) Committee, a multi-agency workgroup
  • Funds the Utah Registry for Autism and Developmental Disabilities (URADD)
    • URADD collects and reports prevalence data on Utah Children with ASD and other developmental disabilities
    • The University of Utah, Department of Psychiatry, manages the collection and analysis of URADD data.
    • Chairs the URADD Oversight Committee to review all proposals using URADD data.


Summary:
The Sources of Distress is a computerized tool developed for parents and professional caregivers of children and adults with severe neurodevelopmental disabilities. This tool uses a computerized branching logic algorithm to identify potential underlying treatment targets for irritability and agitation that may otherwise have been unrecognized or insufficiently treated. The Sources of Distress takes about 15 minutes to complete. Through the completion of this survey, parents and professional caregivers have the opportunity to describe what they know about the affected individual in a manner that may translate into the potential presence of one or more conditions that commonly contribute to irritability and agitation in this patient population.

Click here to complete the survey

Utah Autism Initiative (UAI)

The Utah Autism Initiative (UAI) committee is a state inter-agency advisory panel of experts in the field of ASD-related research and treatment. UAI is formed solely to benefit the citizens of Utah affected by or having an interest in ASD. The UAI maintains no commercial interests whatsoever in any party outside the membership of the UAI.

Utah Autism Initiative State Plan 2017

Frequently Asked Questions about Autism Insurance Coverage in Utah

In 2014, the Utah legislature passed SB57, requiring certain parts of the state-regulated health insurance market to cover autism. That law will go into effect soon. Here are answers to some of the questions you may have about it. If you have more questions, please send them to utahautismcoalition@gmail.com.

Utah Registry of Autism and Developmental Disabilities (URADD)

The Utah Registry of Autism and Developmental Disabilities (URADD) monitors and collects information about the numbers of individuals with ASD and other disabilities in Utah. CSHCN and the University of Utah utilize an Oversight Committee to assist in the use and management of the URADD data.

utahautismregistry.org/

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