Children With Special Health Care NeedsPhone:(801)584-8284 TollFree:(800)829-8200

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Children with Special Health Care Needs (CSHCN) Programs

To assure quality health care and related services for children and youth with special needs and their families throughout the State of Utah.

Autism System Development
To identify needs and promote available statewide services to assist families and individuals with autism and their caregivers.

Baby Watch Early Intervention Program (BWEIP)
To provide support and services to families with children from birth to age three years who have developmental delays or disabilities.

Child Health Advanced Records Management (CHARM)
To provide secure, child-specific, integrated public health information that is accessible to health programs and professionals that have a specific need for this information.

Children's Hearing Aid Program (CHAP)
To provide early access to hearing aids for hearing impaired infants and young children of financially eligible families, in order to maximize their communication and learning potentials.

Critical Congenital Heart Defect (CCHD) Screening
To create a safety net for all babies born in Utah by educating health care providers, improving the screening process and diagnostic technology, and creating a statewide CCHD screening and data collection system.

CSHCN Family Advisory Committee
To assist, inform and advise the CSHCN Bureau in more clearly understanding the family/parent/individual perspective on issues, needs, and services. Promote partnerships and engagement which ensures a voice for families and individuals with special health care needs to improve the system of care.

Cytomegalovirus (CMV) Public Health Initiative
To educate women of child-bearing age in Utah on the risks of Cytomegalovirus during pregnancy and to teach them strategies for CMV prevention; to facilitate the screening of eligible infants for the presence of congenital CMV infection that allows for early detection and intervention.

Early Hearing Detection and Intervention (EHDI)
Utah’s Early Hearing Detection and Intervention Program provides newborn hearing screening oversight to assure all infants born in Utah have access to early screening, identification and intervention for hearing loss.

Fostering Healthy Children Program (FHCP)
To promote the health and well-being of children in foster care by assuring access to timely health care for children in Utah’s foster care system so their needs will be met in a timely manner.

Integrated Services Program
To provide coordinated care planning, education and resources to CSHCN and their families to assist them in making informed decisions about primary and specialty health care, behavioral health and social services to help meet their needs during the pediatric life cycle through transition to adulthood.

Kurt Oscarson Children's Organ Transplant Fund
To provide financial support for children under age 18 who require organ transplants through an interest-free loan.

Technology Dependent Waiver
To provide home and community-based services for technology dependent, medically fragile individuals with complex medical conditions who would otherwise require care in a Medicaid enrolled skilled nursing facility.

Utah Birth Defects Network (UBDN)
The Utah Birth Defect Network seeks to prevent birth defects and secondary disabilities by monitoring occurrence, conducting research, providing education and outreach.

Zika Surveillance, Intervention and Referral Program
UBDN, in collaboration with our partners, will maintain rapid real time population-based surveillance of microcephaly and other CNS defects possibly linked to Zika virus infection during pregnancy and ensure affected infants and families are referred to services.

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